The patient advocacy perspective is one that is commonly discussed amongst migraine stakeholders, getting the insight from those who work to ensure the migraine awareness is widespread and the outreach to patients is great.
Nim Lalvani, Director , American Migraine Foundation
Nim Lalvani has worked in patient engagement, patient programming, and patient advocacy for over twelve years. She has held patient-focused and leadership positions at organizations including the National Kidney Foundation, Young Survival Coalition, and New York State Health Foundation. She firmly believes in the mission of the American Migraine Foundation and feels that no one living with migraine should suffer in the dark. As the Director for the American Migraine Foundation, she plans to fully commit to the needs of patients affected by migraine and ensure that they have access to support, resources, and research that will empower them throughout their patient journey.
Kevin Lenaburg, Executive Director, Coalition For Headache And Migraine Patients CHAMP
Kevin’s connection to migraine disease is both personal and professional. He serves as the primary caregiver to a loved one with disabling chronic migraine and has witnessed their transition from being episodic (a few migraine attacks per month) to now having headache pain every day. Building from this personal experience and his passion to find better treatment options for migraine disease, Kevin now serves as the Executive Director of the Coalition For Headache And Migraine Patients (CHAMP).
It is important in migraine drug development to look beyond the guidelines and learn from existing successful or unsuccessful trials. How to treat each patient and learn from the trials. Patient management and successful endpoints are critical to trial success.
This workshop will focus on:
• Managing patients and knowing how to effectively treat at an early stage
• Improving patient recruitment and retention
• How to make a trial more attractive and adaptable to the patient
• Exploration of alternative endpoints, such as functionality as a marker
Melissa Darsey, Physcian, John R. Graham Headache Center Brigham and Women’s Faulkner Hosptial
Melissa Darsey, MPAS, PA-C, is a physician assistant at the John R. Graham Headache Center at Brigham and Women’s Faulkner Hospital in Boston, Massachusetts. She graduated from Massachusetts College of Pharmacy and Health Sciences University in Boston, Massachusetts, and promptly entered into the headache field. In her clinical practice, she specializes in specific therapeutic interventions for management of different headache diagnoses, including migraine and cluster headache, as well as follow-up, urgent visits, and infusion center management for patients in the practice. She is also actively involved in coordinating research protocols at the Graham Headache Center.
Maureen Moriarty, Associate Professor, Marymount University
Maureen Moriarty DNP, ANP-BC, FAHS obtained a graduate nursing degree in primary care of adults from the University of Maryland in 1986. Since this time, her clinical practice, as a board certified nurse practitioner centers on care of patients with headache. This includes direct patient care, clinical research (both investigator and pharmaceutically initiated) and regional, national, and international educational offerings for provider and lay audiences on a variety of headache topics.
She obtained a Doctor of Nursing Practice degree from Johns Hopkins University in 2010. Her clinical research project focused on headache. She was awarded the Nurse Practitioner of the Year award for the District of Columbia in 2015 from the American Association of Nurse Practitioners for excellent clinical work with headache patients. Dr. Moriarty served as co-chair for the Nurse Practitioner/Physician Assistant (NP/PA) American Headache Society Special Interest Group from 2012-2016. Under her direction “The Bridge Program” was developed. Content in this one day seminar is targeted to NP’s and PA’s encountering headache complaints in primary care settings. Since inception in 2016, the program has been successfully presented in multiple national venues. Dr. Moriarty was inducted as a Fellow in the American Headache Society in 2017.
In additional to an active clinical practice at MedStar Georgetown University Hospital since 2010, Dr. Moriarty continues to publish, research and speak nationally and internationally on headache related topics